About the development and utilization of the STARx（The Self-management and Transition to Adulthood with Rx = Therapeutics）-P（The Parent)
About The STARx-P
In Japan, there are few previous studies focusing on parents’ perceptions of patient migration, and the current situation is limited to qualitative studies and case reports on the necessity and attempt of migration (Fukagawa, 2006; Kato). , Nakano, 2015; Sakurai, 2016).
The STARx (The Self-management and Transition to Adulthood with Therapeutics = Rx)-P (The Parent) developed by Nazareth et al. (2018) in the United States as a tool for parents to evaluate the transition readiness of patients with chronic diseases. Consists of all 13 items and three subscales of “Disease Knowledge”, “Provider Communication” and “Self-management” (Nazareth et al., 2018). “Disease Knowledge” asks the patient’s knowledge of the disease, such as how to deal with the disease, “Provider Communication” asks about the status of communication with the medical doctor, such as collaboration with a family doctor, and “Self-management” asks for planned oral administration. Ask about the patient’s self-management status. The answer is a 5 Likert formula, such as “How often did your child make an effort to understand what his / her doctor told them?” Or “How often did your child need someone to remind him / her to take their medicines?” The questions asked in “How often ~?” Are “Never (1 or 5 points)”, “Almost Never (2 or 4 points)”, “Sometimes (3 points)”, and “Almost Always (4 or 2 points)”. Answer with “Always (5 points or 1 point)”. Questions asked by “How much ~?” Such as “How much do you know about your illness?” Are “Nothing (1 point)” “Not Much (2 points)” “A Little (3 points)” “Some ( 4 points) “A lot (5 points)” will be answered. “How easy or hard is it for you to talk to your doctor?” Answer with “nor easy (3 points)”, “Somewhat Easy (4 points)”, and “Very Easy (5 points)”. It can be interpreted that the burden will be reduced, and by selecting “I do not take medicines right now (6 points)”, generally any patient can be evaluated using this tool without excluding patients who do not take the drug. Depending on the answer you choose, 1 to 5 points or 1 to 6 points will be added for each item, and the higher the total and subscale scores of these, the more you can acquire your own daily health care and independent medical treatment behavior. It is interpreted that the migration preparations are proceeding smoothly. The STARx-P original version of Cronbach’s α coefficient is .759 for “Disease Knowledge”, .696 for “Provider Communication”, .545 for “Self-management” (Nazareth et al., 2018), The STARx-P Japanese The α coefficient of the version of Cronbach’s is .759-.884 (whole scale and each subscale), and the intraclass correlation coefficient in the retest method is .776-.900 (whole scale and each subscale), which is sufficient. Consistency and reproducibility have been confirmed. Please use the form below to contact us regarding the use of The STARx-P Japanese version.